Sofia Sees Hope
Inspired by Sofia, a young teen who would like to see the stars at night, we align with the vision of Sofia Sees Hope: someday everyone with an inherited retinal disease will be able to look up and see the stars.
Sofia Sees Hope is a patient advocacy organization dedicated to transforming the lives of those affected by blindness caused by Leber congenital amaurosis (LCA) and other rare inherited retinal diseases by generating awareness, supporting affected families, and raising funds to advance research for diagnosis, treatments, and cures. On December 20, 2017, Sofia became even closer to seeing as the FDA approved Luxturna. This young girl loves to row, and our technology allows her to participate at a competitive level. |